Charcot Marie Tooth Story
Charcot Marie Tooth disease patient, Diane Gracely is a 55 year old hippie in Florida. She’s on a mission to educate the world about CMT. Diane’s tired of explaining it to doctors, nurses, and the general public over, and over, and over.
She’s sharing her inspiring personal CMT life story with the world through videos on her YouTube channel and here on her blog (<<click here), both called Hippies Life – My CMT Life. Learn more about Charcot Marie Tooth by watching Diane’s videos and reading her blog.
After all, Diane’s goal is a world of people who KNOW what Charcot Marie Tooth disease is. CMT is the rare hereditary neuromuscular disease with the funny name, that no one has ever heard of. The name came from the three doctors who discovered it. 1 in 2,500 people have CMT. CMT is a debilitating neuromuscular disease that deforms the feet. It also deforms the hands of some patients. Patients have peripheral neuropathy and muscle atrophy. High arches, ankle weakness, and poor balance are some of the first symptoms. Some patients have symptoms start at a very young age, and some not till their 40’s or 50’s.
So why does no one know what CMT is? Many doctors are even clueless. How can that be? Diane has asked many doctors over the years that exact question. Their response is, Charcot Marie Tooth was mentioned in college, but we were never educated more about CMT.
Charcot Marie Tooth Deformed Diane’s Feet
Diane became permanently disabled by CMT in 1997. However, she was never one to give up on anything. She bought a computer and began looking for a doctor who could help her. Diane’s feet had become badly deformed due to the progression of CMT. She knew she could not survive on Social Security Disability alone. Diane was determined to figure out a way to work from home. She wanted to start her own business online.
In conclusion, she did just that. She’s now a successful 22 year online home business entrepreneur. You will have to follow her inspiring story through her videos to learn how she did it. And, what she did.
Currently Diane is a graphic designer. She creates colorful hippie art, funny memes, and inspiring quotes. Her art is for sale on shirts, accessories, and home decor through TeePublic, a print on demand company. The name of her online store is Diane’s Tees.