Charcot Marie Tooth Disease Blog and Support
Charcot Marie Tooth disease blog and patient support. CMT patient, Diane Gracely is a 56 year old woman living in Florida. In 1997, CMT permanently disabled Diane at the age of 33. She’s worked online educating and supporting other CMT patients and families since 2013.
‘Subscribe to Diane’s CMT Newsletter to your right.’
Support for Charcot Marie Tooth Patients and Families
Diane’s been working online since 2013 advocating, educating, and supporting CMT patients. Diane is passionate about helping and supporting Charcot Marie Tooth patients. Visit her CMT Support Facebook page and CMT Support Group on Facebook. After all, Diane’s goal is a world of people who KNOW what Charcot Marie Tooth disease is. Go to Diane’s main support page for more info.
On this website Diane shares information for CMT patients. Plus, Diane writes articles about CMT for her blog page. In addition, Diane creates short videos on her YouTube channel. Learn more about Charcot Marie Tooth disease by looking at the information provided on pages throughout this website. Keep reading for more information below.
What is CMT
CMT is the rare hereditary neurological disorder with a funny name, that no one has ever heard of. The name came from the three doctors who discovered it. 1 in 2,500 people have CMT. CMT is a progressive and debilitating neuromuscular disease that deforms the feet. It also deforms the hands of some patients. Patients have peripheral neuropathy and muscle atrophy. High arches, ankle weakness, foot deformities, and poor balance are some of the first symptoms. Some patients have symptoms start at a very young age, and some not till their 40’s or 50’s. Currently there is NO CURE.
Read About Diane and Charcot Marie Tooth Disease
Diane was born with CMT and became permanently disabled by CMT in 1997. However, she was never one to give up on anything. She bought a computer and began looking for a doctor who could help her. Diane’s feet had become badly deformed due to the progression of CMT. She located an orthopedic surgeon in Hershey, Pennsylvania. Dr Juliano reconstructed both of Diane’s feet and got her walking again. She was laid up for 3 years while having surgeries and then learning to walk again.
Although, Diane has never regretted having the reconstructive surgeries. It was a long battle but well worth it. Here it is 2020 and Diane is still walking. She wouldn’t be if she had not had the surgeries to straighten her deformed feet.
Show Diane You Appreciate Her Hard Work and Support
Diane designs CMT awareness designs for shirts, accessories, and home decor. Plus colorful art with funny quotes. Choose from over 600 designs on over 75 products in her online store on TeePublic. She earns a small commission by selling her designs/art on TeePublics products. After each verified sale, Diane earns $2 for each product sold. It’s not much, but it helps support Diane for the time she puts into supporting CMT patients. Go to her main store at TeePublic to shop. <<Click Here.
Thanks for reading this page. In conclusion, Diane hopes you will show appreciation for her hard work by purchasing CMT shirts and products.