Symptoms

Charcot Marie Tooth Symptoms

Charcot Marie Tooth symptoms and information by Diane Gracely. The symptoms vary from patient to patient, but the disease affects the patients feet first.

Charcot Marie Tooth disease symptoms
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What is Charcot Marie Tooth Disorder

Diane Gracely was born with Charcot Marie Tooth disease. A hereditary neurological disorder that deforms the feet. As the patient ages CMT progresses, causing many more health problems. CMT is a rare disease. 1 in 2,500 have Charcot Marie Tooth. Therefore, it’s not as rare as most people think. But, no one has ever heard of it. There is NO CURE for CMT.

charcot marie tooth
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CMT Deformed Feet Photos

In any case, CMT causes muscle loss and eventually can severely deform the patient’s feet. Below is a picture of Diane’s feet before she had foot reconstruction surgeries.

deformed cmt feet
Diane’s Deformed CMT Feet

Diane became permanently disabled by CMT in 1997. She could not walk without excruciating pain in her feet. She found a neurologist who was well educated about Charcot Marie Tooth. Throughout a three year time frame, he reconstructed both of Diane’s feet. Below is a photo of Diane’s feet now.

cmt feet
Diane’s CMT Feet Today

Visit Diane’s CMT Support page for more information.